tag:blogger.com,1999:blog-4949225346154231418.post5731848095156643997..comments2023-07-29T05:44:55.781-05:00Comments on Our life: Insane weeklifejourneyhttp://www.blogger.com/profile/10443034981883457960noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4949225346154231418.post-58662328456770849572008-01-19T21:57:00.000-06:002008-01-19T21:57:00.000-06:00I just found your site and look forward to followi...I just found your site and look forward to following your pregnancy (mentioned in newer January post). I've read a lot about Fragile X because it was something that docs wanted to rule out for my son who has autism.<BR/><BR/>Maybe it would help you to understand Fragile X a little more if you just assumed that it will be "autism". More seems to be known about that and many autistic kids are actually suffering from Fragile X.<BR/><BR/>Especially if you have a male child who is affected by Fragile X, he probably will be autistic as well.<BR/><BR/>I'm glad to hear you say that you'll love this child as much as you would love a child not affected. People who have typical children think that children with a disability must somehow be a burden.<BR/><BR/>The good thing about Fragile X is that it can be detected much earlier than autism caused by other factors so you can begin treatment as early as possible. Early intervention is the single most important factor in how well a child with a disability will do as an adult, whether the adult can live an independent life and live up to the potential that he chooses or whether the person has to have full-time care and supervision for the rest of their life.<BR/><BR/>Sorry to sound like a sourpuss. I'm not really. If your child has Fragile X, it's quite a lucky thing to be diagnosed early and you know that your baby is at risk while you're still pregnant.<BR/><BR/>I couldn't even get my doctor to do any testing on me while I was pregnant.<BR/><BR/>On the other hand, your baby could be completely unaffected. Either way, I wish you much happiness and hope that this baby is the "sticky" one.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4949225346154231418.post-86225065972126516852007-12-01T16:25:00.000-06:002007-12-01T16:25:00.000-06:00I'm so sorry about your FIL. I hope 2008 brings al...I'm so sorry about your FIL. I hope 2008 brings all of you a fresh start with lots of good things in store.<BR/><BR/>DDMB (andbabybmakesthree.wordpress.com)https://www.blogger.com/profile/10384185730558438380noreply@blogger.com